Sunday, August 27, 2006

Alzheimer's La La Land

My Dad has Alzheimer's. Thankfully, he is living at a "health care center" a place previously known as a nursing home. It is part of a larger, elderly living arrangment complex. Actually, it is a nice place located on acres of beautiful, well maintained land with a river running through it. When my Mom was alive, they lived in independent living and had their own large apartment. After Mom died, Dad stayed in indpendent living, but his Alzheimer's slowly got worse and we moved him to assisted living.

In assisted living, he still had his own, small 2 room apartment and paid for the extra care he needed such has getting his meds, being reminded to go to meals, activities, etc. He was still very active and I loved going out there and walking along the grounds with him and my dog, Gracie. My Dad was always active and loved long walks.

After a fall and knee surgery last October we moved him to the health care center, where he has remained. Since then he had another surgery. After each surgery, the Alzheimers gets worse.

Today at his facility, there was a band concert on the grounds. My sister and I drove out and put Dad in a wheel chair and wheeled him outside to the concert area. It was lovely and so many people were there who knew him. However, he didn't remember them. At one point I said, "Do you know who I am?" He didn't remember. He didn't remember my sister, either.

It's sad. But, I try to see the best side of this situation. My Dad is very happy and always cheerful. He loves any type of company. He has always been a very friendly, social man and still is. Conversations with him are limited. He may not know who we are at any given time, but he is happy to see us. He really enjoyed the couple of hours outside, listening to the Dixieland jazz band. They played the "oldies, but goodies" music and he sang along. He talked briefly of playing the accordian in a band when he was a young man- in the 1940's. In fact, he seems stuck in the 1940s. That's OK. It was the best time of his life - he met my Mom, had 2 of his 3 daughters - life was good. Although he served as a medic in WWII, he was far behind the lines and never saw any fighting - just the results. The '40's were very happy years for him.

My Dad is 88. He has told us over the last couple of years that he would like to live to 90. Physically, despite his bum knee, he is very healthy.

Today, at the band concert, when I told my sister that Dad didn't remember we were his daughters or our names she teared up and said, "Maybe we should tell him he's 90."

Maybe so.

7 comments:

Earthbound Spirit said...

Welcome to the blogosphere, ja ja!

I know it's hard to see your dad deteriorate, but it's wonderful that you and your sisters are sticking by him. Not all families do, you know? That is a testament to what a wonderful father he was and what a great family you have.

Even through the problems, I think it's a blessing that your dad is reliving the best years of his life at this time. It has to make what's happening to him much less frightening.

Blessings to you...

QMANN said...
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QMANN said...
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GOLFMYWAY said...

I am a babe in the woods when it comes to this blogging. I know your posting is dated. However, I enjoyed reading about your father. My mother has early stages of the disease and I intend to learn as much as I can. Your article was helpful. Thank you.

Julie-Ann said...

golfmyway -

Not quite sure how you came across my blog, but that's OK. Sorry to hear about your Mom. My Dad is still going strong physically, although he hardly remembers us (my sisters and me) any more. Luckily, I have a good support system which includes sisters and my partner and my Dad has excellent care at the health care facility he lives at. Good luck with your Mom.

GOLFMYWAY said...

Julie Ann-

Thanks for response. Went on blog search and came across your article. I am glad things are "well" with your father. Under all circumstances it makes a difference having a great support group. My sisters and I talk a lot about how we need to be there for each other and our mother.

Question, if I may, serveral people have told me and corresponded that at some point the person can become violent. This is a huge concern for us. Has your father exhibited any of that?

I trust you do not mind sharing thoughts with me on this matter?

Thanks

Julie-Ann said...

I don't mind sharing my thoughts on my father's Alzheimer's.

We (my family and partner) have found that keeping a sense of humor about it helps the most. To be able to laugh about the symptoms he exhibits, such as excessive repeating of questions and sentences, helps keep things in perspective. Also, to remember the good times when my dad's mind was as sharp as a tack.

Also, we found while he doesn't remember our names at times, he remembers the lyrics to all of the old songs he enjoyed. So, now we sing a lot when with him. It makes it fun for all of us.

My one sister has a difficult time spending time with Dad. That is OK. We don't judge her. She told me and my partner that when she leaves Dad she feeling like she is leaving a puppy along side the highway. I know I have cried when I leave him. I'm lucky my partner is very supportive. He is willing to visit Dad with me and comforts me if I get sad when leaving him.

As for the violence, my Dad hasn't exhibited any of it thus far. Quite the opposite - he is always happy and cheerful. We are very blessed in that respect. I know it happens. I had an aunt that was the sweetest woman in the world, but when Alzheimer's set in she turned into a monster. Her children really took that hard as some of the words out of her mouth where words she had never, ever said before and they didn't even know where their mother ever heard them. She would also pinch, bite and slap. It was sad.

I suggest you find an Alzheimer's support group. They can offer a lot of information and answer questions you might have.